HIT CF 2.0 Rainbow
Four years ago the NCFS started funding research that tackles the cause of CF. In total there have been financed in recent years 16 subprojects within its HIT CF project. Skate4AIR has contributed significantly to these studies. HIT CF has developed a method whereby in the laboratory can be tested if drugs will have effect for the individual patient.
Meanwhile, there are many new drugs in development for people with CF. The expectation is that there will be a number of new medications on the market within the next 10 years to tackle the cause of CF. We also see that a combination of new drugs with existing drugs produce great results in the laboratory. Before these medications may be prescribed, it is imperative that we be able to prove that these drugs will actually result in the individual patient. With the Rainbow Project, which falls under HIT CF 2.0, the NCFS wants to make it financially possible for patients who have been shown in the laboratory that a drug (or drug combination) works to test for a period of 3 months by the patient himself. Obviously this is examined under medical supervision. If after three months the agent demonstrably works, then the agent can be prescribed. The costs of testing in practice amount to € 5,000 per person. Read here more about the organoids.
About Cystic Fibrosis
People with CF (also known as CF) suffer from exceptionally tough mucus in the body, making the body less waste as inhaled particles and can attack bacteria. The consequence of this is that the organs, such as lungs and the pancreas still worse work. In the Netherlands live about 1,550 people with CF, including 650 children. The average life expectancy for people with CF is currently 40 years.
The Dutch Cystic Fibrosis Foundation (NCFS) is committed to a longer and better life for people with cystic fibrosis (CF).